How data in your GP record is used and how you can control the use (opt-out)

As a practice, we fully respect your right as a patient to control your data. We outline our privacy policy in more detail on our website and explain how we share data with other providers, including the Great North Care Record and NHS Digital for secondary use.

You have the right to opt-out at any time from data being shared.

Your data is used in broadly two different ways:

  1. To provide you with care. This is called “Primary Use
  2. To allow for planning and research to be done. This is called “Secondary Use

Both uses will only be made where it is considered secure and appropriate to use patient data.

Opting-out of data sharing is an option for all patients, however it is not without potential downsides. For Primary Use data, if you opt-out and need care in a local hospital, for example, it may be much harder for the staff to access important medical information about you needed to provide safe and effective care. For Secondary Use, the downsides are more indirect. If everyone in the country were to opt-out, it would make it much harder to ensure funding is used in the NHS to develop services where they are needed. It would also be harder to develop new treatments.

It is possible to opt-out of specific parts of data sharing, while keeping some elements of data sharing in place. It is very common, for example, for people who have privacy concerns about Secondary Use, to be happy to continue sharing data for Primary Use/Direct Care.

The table and diagram below summarises what opt-outs are possible, and how to request them:

How data in your GP record is used, and how you can control the use

Primary Use – sharing your data for your direct care

Who it is shared with How it is used How to opt out
Summary Care Record These are used by NHS hospitals and other providers (e.g. midwives) to ensure they have the data needed to provide you with the right care. Opt out through your GP practice – contact reception to speak to a member of staff and we will be able to apply the opt-out
Great North Care Record

 

Secondary Use – Using your data to design health services and do health research

Who it is shared with How it is used How to opt out
Local NHS Organisations (such as Clinical Commissioning Groups) Using data to plan how to design local services around the needs of the population Use a ‘type-1 opt out’ – Please return this form to the practice.
NHS Digital Using data to plan and design national services around the needs of the population
External research organisations Using data for various research purposes Use the National Data Opt-out – Visit the NHS website, use the NHS App or call 0300 3035678

 

 

How to manage your sharing preferences using the NHS App

You can view or change your current preference at any time.

To view and change your preference in the NHS App:

  1. Go to Your health
  2. Select Choose if data from your health and care records is shared for planning and research.
  3. Select Make your choice.
  4. Review the information on the page, then select Start now.
  5. View your preference, then select Change if you want to change it.
  6. Update your choice, then select Submit.

You can also visit www.nhs.uk/your-nhs-data-matters.

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General Practice Data for Planning and Research

The way data is collected from GP systems is being replaced.

This collection is called GP Data for Planning and Research and its purpose is to support the data needs of the health and social care system including policy development, public health, planning and commissioning of services and research.  This new collection is designed to reduce the number of requests for access to data received by general practice.

Please watch this short video to find out more.

 

More detailed information can be found via NHS Digital, including the process of how you can opt out.

Data collection will start on 1 July 2021, if you do not want your data shared with NHS Digital, you need to register this by 23 June 2021.  Please complete this form and return to us.

Mythbusting social media posts about the national data opt out

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Pharmacy Nominations

To help ensure that footfall to the practice remains low during the current easing of lockdown restrictions to help ensure a low level of contact, if you have NOT previously nominated a specific pharmacy we will arrange for your prescription to be available for collection at ANY pharmacy to dispense to you once you have requested any items.

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IMPORTANT UPDATE REGARDING YOUR COVID VACCINATION

When you are eligible for your COVID vaccination you will receive a text message with a link to invite you to book your vaccination. Please be assured that this message is a genuine message from the practice. You will also receive this text to book in for your second dose.

Your text message will look like this:

Dear Mrs TEST,
You have been invited to book your
COVID-19 vaccinations.
Please click the link to book your vaccination times: accurx.thirdparty.nhs.uk/r/gjdnfhfrtf

If you do not have a registered telephone number the practice will contact you via letter to invite you to book your vaccination.

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Proof of vaccination

We are unable to issue this certificate at the practice.

Please see https://www.gov.uk/guidance/demonstrating-your-covid-19-vaccination-status-when-travelling-abroad for further information.

Proof of your vaccination status will be available on the NHSapp, which is also valuable for accessing your health records and ordering repeat prescriptions

The NHSapp can be downloaded from Apple Store for iPhone or Play Store for Android.

Please follow this link to Digital Health Coach for instructions on how to obtain and register on the NHS App.

Alternatively, you can call the NHS helpline on 119 (from 17 May) and ask for a letter to be posted to you. This must be at least 5 days after you’ve completed your course of the vaccine, the letter may to take up to 5 days to reach you.

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